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Kim Voynar

By Kim Voynar Voynar@moviecitynews.com

Sundance Review: When I Walk

I’m not always a big fan self-exploratory, therapeutic docs in which the filmmaker explores some aspect of their lives through cinema, but When I Walk, director Jason DaSilva’s wrenchingly autobiographic journey through the hell of his rapid physical deterioration after a diagnosis of multiple sclerosis is an exception to that rule.

DaSilva was filming a vacation trip with his family in 2006 when he collapsed to the ground and found himself unable to get up again; from that moment on his previous life of traveling the world to make documentary films would never be the same. As part of coming to terms with the new and ever-shifting “normal” that would be the rest of his life, DaSilva followed his instinct, picked up his camera, and turned it on himself. This project could have devolved into the maudlin and self-absorbed; instead DaSilva’s strength and resilience, his determination to stay positive – bolstered in part by his relentlessly positive mother, who’s prone to calling him out on any over-privileged American kid whining and reminding him constantly that we only have one life to live, and have to make the most of it – is what shines through every frame of his story.

When I Walk follows DaSilva through diagnosis and endless medical tests, and cures both Western and otherwise, as he loses his strength and ability to make his body do what he wants it to do. His gait becomes erratic and halting; his coordination gets clumsier and clumsier; he’s forced to use a cane, then a walker, then finally a motorized scooter to get around. He has to deal with the loss of his sense of self, too; the beautiful women who flocked to him when he was healthy are nowhere to be found, and the challenges of continuing to pursue his lifelong dream of filmmaking force him to question whether he can continue to follow that path. In the midst of making a film about himself, he travels with his brother to India to attempt to make a short film, only to have to ultimately abandon that project. Yet still, he perseveres and dreams, fights his disease and seeks a cure, and pushes himself to finish this documentary, at least, no matter how big a mountain that may be to climb.

As DaSilva’s condition deteriorates his body, he’s also forced to come to terms with the inherent challenges of living in New York City as a disabled person. Coffee shops, stores and restaurants that he once would have entered without thinking about it are now closed to him by their lack of disabled access. Cars nearly run over his scooter on the street, irritated drivers blare their horns at the audacity of a man who can no longer walk daring to inconvenience their own traverse, most likely never pausing to consider that they might ever find themselves in a similar situation. Who would ever think that a healthy, energetic young person might suddenly find their world turned upside down? That’s the kind of thing that happens only to others … until, like DaSilva, you find it’s happened to you and your life will never be the same.

But then DaSilva finds that maybe life isn’t completely over, when he meets Alice Cook at an MS support group. Her mother also has MS, so she knows, at least to an extent, what she’s getting into, and DaSilva’s camera unflinchingly charts the course of their relationship through its peaks and valleys, doubts and fears. What will it mean to be in a long-term relationship with a man who ultimately might not be able to move, or even talk? Could they have children one day? And most of all, is she willing to take on the work and responsibility of being the person who’s committing to care for this man she loves, in sickness and in health, for better or worse? Her father seals the deal when she asks him if she should date a person with MS. I am, he said. I’m with your mother. It’s hard to argue with that.

When I Walk overcomes the risk of being gloomy or solipsistic by the sheer force of the personality of its director and subject, and most of all by the bravery and honesty with which both DaSilva and Cook are willing to turn the lens toward themselves, sharing their moments both lovely and sad as they seek to overcome the obstacles and find a way to make life sweet in spite of this unexpected fork in the road that’s made of his life something completely different than he ever thought it would be. It’s a lovely, inspiring film, deeply personal and honest, and it’s a privilege to watch from the wings as DaSilva comes to accept that this, now, is what his life is, and he will find a way to continue to make it an amazing journey.

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“I don’t really think, Sean, that you need to know about my various sexual liaisons. Or that anyone else needs to. I did write about them. I filled a hundred pages of Moleskine notebooks with my one-night stands, my affairs. But I decided they didn’t belong in a professional memoir. First of all, these are real people we’re talking about. Many of them were enjoyable. Some were abject failures. My wife said to me when she read the pages, ‘Of what purpose is this in a memoir? Of what purpose is this other than to titillate?’ The point is, I never see them. It’s because I have nothing in common with them, frankly. And probably didn’t at the time. I could not provide a sensible reason why I married these women. The thing is, in the case of my marriages, it takes two people to fuck up a marriage. It wasn’t simply the fault of these women that I lost interest in them and realised they were insignificant relationships. Which is how I look at them right now–as being insignificant. I see them as blips.”
~ William Friedkin On Cutting Interviewers Off At The Sass

“I have to imagine from Mr. Spielberg’s point of view, the paradigm shift in the 1970s was just the new “normal,” a “halcyon era” from which we are straying in the 21st century–because theatrical exhibition is tenuous (as it has been since the 1940s), the home video market has dried up and people are watching pirated movies on their phone. Spielberg’s coming-of-age era was for him the halcyon period that the 21st century “implosion” will cause to go “crashing into the ground.” But he is wrong. The market for movies is actually diverse and highly segmented–although from the top-down movie industry vantage point and media punditry you would not think this to be true.  Would we really mourn for Mr. Spielberg or ourselves if Lincoln would have been made for cable or had played on public television?  Is it bad for humanity that cable television is creating wonderful, resonant stories in long-form series that people want to watch at home on TV (or streamed onto their computer)? I don’t think so, but it is a paradigm shift and it might affect people’s theatrical moviegoing habits. Televisions in people’s homes have had that effect for seven decades–it is not a new phenomenon. As Art House cinema impresarios we need to focus on what WE can do at our theaters and in our communities. It is not productive for us to fret over what pundits say or about what well-meaning filmmakers like the Stevens–Spielberg and Soderbergh–say. We should fret about what we can do in our communities. What we can do to support filmmakers.”
~ From A Response By Russ Collins, CEO, Michigan Theater–Ann Arbor And Director, Art House Convergence, To Mr. Spielberg